Exploring the mystery around autism

By Alexander Rich, Staff Writer
Thursday, March 19, 2009 | 12 comment(s)

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Mar 13: 911 call leads police to woman's body
Mar 14: Teacher warned teen might kill
Mar 16: Autopsy: Woman bled to death
Mar 17: Statement details reasons for homicide arrest
Mar 18: Teen to get mental evaluation
Mar 18: Family claims death accidental
Mar 20: No room for Cozad at state hospital
Mar 20: No evidence to support fall theory
Mar 23: Grand jury indicts Cozad
Mar 28: Autistic murder suspect burdens jailers
Mar 28: 'Clothed with compassion'
Mar 30: Judge will decide if murder suspect is unfit for trial
Mar 31: Cozad heads for hospital
Apr 02: State is obligated to protect people
Apr 07: State will tailor care for murder suspect
May 19: Cozad's dad faces indictment
May 21: DA hopes to commit Cozad
May 27: 'Missing mom' defends ex-husband
Jun 11: Cozad had violent history
Jun 11: Pediatrician says family inconsistent in treatment
Jun 12: Inmate has become more aggressive
Jun 12: Nurse describes trauma
Jun 13: Judge commits Cozad to state
Jun 16: 'The system' failed Linda Foley
Jun 20: Henry Cozad: What went wrong?
Jun 30: Cozad attorney seeks more time
The world would be a frustrating place if you had severe autism. Bright lights and noisy rooms could overwhelm your senses. Body language would be incomprehensible to you. And should you try to express yourself, people might not understand you.

These limitations make communication challenging whether it be with a teacher, another student or an attorney.

It's for this reason Henry Cozad may never stand trial on the charge of murdering his father's girlfriend last week in Coos Bay. His father and the district attorney say he suffers from severe autism. He has been sent to Salem for a mental evaluation. If he is found to have a severe mental disability, whether or not it's autism, it would be impossible for him to explain his story to the lawyer defending him.

He may not even realize something wrong happened, said Vicki Goodrich, a former South Coast Education Service District board member and mother of an autistic son. Although she has never met Cozad, Goodrich said if he has severe autism, then he likely doesn't understand what is going on.

"I feel so bad for him. I hope they understand his world and autism," she said. "He has no concept of death or murder."

What is autism?

There is a fair amount of mystery surrounding autism, a cognitive disability that normally appears in a child's second year. Its cause hasn't been proven and it affects people differently.

Kelly Donaghay, an autism specialist with South Coast ESD, describes it as a spectrum with varying degrees. At the high-end, students with minimal autism have social issues.

"It's not knowing how to go up to someone and introduce themselves," she said. "They don't understand the give and take of conversation."

At the other end of the spectrum, students can't talk. They have trouble communicating their feelings and have trouble understanding what's going on around them.

Goodrich likens it to having duct tape put over your mouth. You still want to communicate, but you're limited in how you do it.

"All behavior they exhibit is communication of some form," said George Woodruff, superintendent of South Coast ESD. "They just don't know how to express it."

Sometimes autistic people lose patience and their behavior becomes unpredictable.

"It's a fear that every parent has," Goodrich said. "Once in a while he will get frustrated. That's the moment you say, ÔGod I hope the police don't get involved.' You have to talk him down. He'll get it out."

It's about understanding and trying to figure out what's wrong.

"Communications skills, that's the key," she said. "All you can do is guess and know out of knowing from having spent time with him."

Danger debate

Woodruff said it is wrong to suggest autistic people are a danger to others.

"It's an inappropriate leap to go from violent behavior to autism," he said.

All segments of the population have people prone to violence.

And if anything, autism is defined more by its differences than its similarities.

"When you've met a student with autism, you've met one student with autism," said Stacy Olson, an autism specialist with South Coast ESD. "Because they are all so very different."

Most students who exhibit autistic characteristics can function in a traditional classroom, said Woodruff. Those with more severe cases go to the life skills program. There they are taught how to live as independently as possible. They also train on how to behave in social situations.

After high school, some enroll in adult transition programs. Cozad had been enrolled in one, though he had not attended since February.

Beyond ESD, people with autism and their families can seek help through organizations like the nonprofit Community Living Case Management.

Getting support

Program Manager Sue Gordon said they care for people with a variety of developmental disabilities including Down Syndrome, cerebral palsy and autism. Each case is different, depending upon the family's involvement and patient's needs.

"It can be offering respite in the home, to purchasing one-shot things, to group home placements," she said.

The service is supported with state and federal funding. No one is turned away, she said.

That doesn't always mean people receive what they need. The programs are voluntary unless mandated by a court. And then sometimes the heavy demand for services limits access to care.

State Rep. Chris Edwards, D-West Eugene, headed a project to look at the state's autism services and he found disparity around the state.

"Because the case loads are so high for autism specialists, cases are kind of handled on a triage basis," he said.

Edwards has proposed a plan to get universities to train more autism specialists and get them in the right place to teach educators and police how to deal with autism cases. He isn't sure what success his legislation would have, however, given the state of the economy.

More often than not, people who need help can't get it because of a lack of funds, Goodrich said.

"You have to wait until police are involved," she said.
Autism


• What it is: a cognitive disability that affects sociability and communication skills.


• Diagnosis: There are two ways to be diagnosed with autism. One is a medical diagnosis. The other is educational.


• The factors: The educational diagnosis is based on social interaction, communication skills, restricted or stereotypical behaviors and unusual responses to sensory input. It also includes a doctor's statement.


South Coast ESD Superinten-dent George Woodruff said he couldn't discuss whether Henry Cozad was diagnosed with autism. His records are confidential.
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DAB wrote on Mar 20, 2009 5:45 PM:

When I said we are wired differently, I wanted to give examples, but this 200 word thing...
I sometimes find myself tapping incessantly, or repeating phrases to myself over and over after haviong said it aloud. People have observed me doing this and I didn't even know I was doing it.
I have no empathy, but I can fake it. Lack of empathy made me a good combat soldier.
I have to wear sunglasses all of the time because I can't keep eye contact. People often assume I am lying when they talk to me because of this. This opens up another set of troubles.
These factors have made my entire life difficult. If the occasional autistic goes nuts and hurts someone, I can't condone it, but I can understand why. Frustration to the point of madness.

to coos bay marine wrote on Mar 20, 2009 12:35 PM:

I have the same problem with the schools, Im getting some help, but the people that are really involved with my son know more than I do.So they say. Its really hard when you try to get help for your children who have autism or any other disability and you get the run around.

coos bay Marine wrote on Mar 20, 2009 10:30 AM:

My son Is Autistic when we try to work with ESD we got the run around when we would asken question they would say they know more than we did an if we did not like then keep our son home so we move an where we are now is getting the help he needed so I feel for what happen there and wonder how much ESD could have done a better job

Saddened wrote on Mar 20, 2009 8:39 AM:

Anyone wanting to have a better perspective on Autism, go pick up one of Temple Grandin's books "Emergence: Labeled Autistic" and read it. You won't know it all, but you'll understand more than you thought you could. Or check out www.templegrandin.com

Educator wrote on Mar 19, 2009 8:00 PM:

I think what we all need to do is wait for the evaluation to come from Salem.

As an individual close to this situation, I think you'll all be surprised at the results.

Aide wrote on Mar 19, 2009 5:56 PM:

Now a days autism is diagnosed far to much. The spectrum is very wide and if you read the signs you would find that everyone has some. I have worked with autisic children. The differance from one to the other is very wide not anyone a like. In my opinion some was just lazy bad parenting. Some are truely confused and need alot of intervention. Sounds like this child.

Mr E wrote on Mar 19, 2009 2:38 PM:

Coquille Mom hit the nail right on the head.

Also, Dab covers something that needs to be addressed... autism is a varied disease (it can be argued that it's a term that is way too broad...), and it is almost lazy for the word to be used by medical professionals to cover such an incredible variance in symptoms, severity, etc. There are many people diagnosed with autism, or who show some symptoms, but aren't really autistic.

By today's definition, I have a form of autism (though I'd be "higher functioning" as well)... but I'm not like this kid, nor am I too similar to any other diagnosed autistics that I've met.

COQUILLE MOM wrote on Mar 19, 2009 2:01 PM:

If you read the paper, YES I do. The man who was his teachers aide and was strangled by him spoke up. It was reported to the police and the school district.

 wrote on Mar 19, 2009 1:58 PM:

Have you read any of the articles Ted???
Even his dad stated in this article that he did not know what provoked him in the IA assault case.

DAB wrote on Mar 19, 2009 1:44 PM:

I can understand autism. I am what is known as a higher functioning autistic. The funny thing about it is that I had no idea of this until recently. I just assumed everyone did what I did and felt what I felt but just hid it like me.

What brought me to awareness of this was my youngest son. He was recently tested and diagnosed as autistic. This was against the opinion of his school Psychologist and his Principal, who insisted that he was highly intelligent, so could not be autistic.

Autistics ARE highly intelligent. I score 140 plus in IQ testing, and am a semi-successful writer, self-trained software engineer, self-trained Electronics technician, and a combat vet.

Our only problem is that we are wired differently.

Ted Walker wrote on Mar 19, 2009 1:40 PM:

"He had shown the signs, and they were ignored."

That's a big statement, Coquille. Your sources to back that up?

COQUILLE MOM wrote on Mar 19, 2009 12:48 PM:

I think that most do not fully understand autism. That being said, if someone/anyone regardless of their disability is violent, steps need to be taken to ensure public safety. Don't lock up everyone with autism or any other learning disability, but do something with those who are violent. He had shown the signs, and they were ignored.


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